MacDonald is reminded about her son's hardships with hemophilia and has a glimpse at the adult he is becoming.

Travel planning has changed in recent years for columnist Allyx Formalejo and her husband, Jared, who has hemophilia.

A single dose of experimental gene therapy GS001 reduced bleeding episodes in men with severe hemophilia A, a study showed.

Many boys with hemophilia play sports regularly, but frequent activity may raise the risk of sports-induced bleeding, a study ...

A single infusion of gene therapy Beqvez led to sustained benefits over six years, results from a trial and extension study ...

Living with hemophilia B and von Willebrand disease means getting used to things people may consider unusual, says columnist.

Children with hemophilia who do not have access to cutting-edge preventive therapies often experience bleeding in the brain, ...

Columnist Jennifer Lynne recently attended the CHES Foundation's One Drop consortium, a powerful space for those with rare ...

Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Not long after I started working at the Hemophilia Federation of ...

There's no easy "fix" for depression, and encouraging professional help when needed isn’t abandonment, writes columnist.

Columnist Joe MacDonald taught his sons how to manage their hemophilia and be independent. But letting go of control is ...

Taking charge of your health when you have hemophilia is of great importance. Regardless of your hemophilia type — A, B or C — the goal is to keep your joints strong and healthy, and to keep extra ...